SSS BLOG

A Little Bit about a Lot of Things

A Break Before the Challenge

Today marks a week that I’ve been off the chemotherapy drugs I’d been taking for four months, and I’m finally starting to feel more normal, almost back to my old self. I knew the chemo drugs were causing me fatigue (which is now thankfully almost completely gone), but I didn’t realize how much they were affecting my brain. As it slowly started to lift, I realized that I’d been living […]

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Ca Va Mieux + The Last Week + The Next Step

So many times during the past 3 months I’ve started to feel better — and then started to hope that I’d turned a corner — only to regress in a day or two or three to a bad place again. So I’m hesitant to report that things are going much better the last 10 days, and will likely continue that way for a while. A good example of the “You […]

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Post Comments, They Will Eventually Show Up

Some of you have noted that comments you make on the SSS Blog don’t show up on the site right away. That is, as they say, a feature, not a bug. I’ve set the site up to require all comments to be moderated (i.e., approved by me before they show up) in light of past experiences in which too many comments were posted by bots from web sites trying to […]

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33.88 and 1.1

Today’s update is brought to you via two numbers: 33.88 and 1.1. 33.88 is the latest result from the “free Kappa light chain” blood test I take every three weeks. Because the abnormal plasma cells in my type of multiple myeloma produce an excess of what are called Kappa light chain proteins (which normally join with “heavy” protein chains to form immunoglobulins that fight infections), a measurement of the level […]

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The Weekly Cycle — And Some News

One of the things I’m finding hardest to deal with is feeling pretty good one day and then feeling rotten the next. It has do to with the shot of Velcade I get on Tuesday mornings. It makes me fatigued and blah-feeling for the next 3 days. Plus it seems to amp up my pain by about 40%. The former I understand, the latter I really don’t, my best theory […]

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One Thing After Another….

Dear Readers: It’s been a while since I’ve posted an update, the reason being that I hit another difficult, low spell in the past two weeks, and every time I started to write it resulted in a litany of complaint and woe about my various physical problems. I deemed the resulting drafts too whiny. So where to begin? First the very good news … the oncologist says that tests from […]

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Update Delayed by Hellish Week

I tried to post an update last week, but all my attempts came out too whiny — and worse, whiny in an obnoxious level of detail. Not that I don’t have good reason to whine: Last week was the worst week I’ve ever had in my life, resulting from a combination of ongoing severe pain in my leg, moderate/tolerable but nonetheless draining impacts from one of the chemo drugs, plus […]

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Good God Not Another Setback

Your long-suffering correspondent is starting to feel a bit like the Old Testament guy Job, a basically good guy that God torments ceaselessly with a series of horrible events. Yesterday I had an appointment with my oncologist, and I mentioned that my left lower leg, ankle, and foot were swollen. She set up an appointment for an ultrasound to rule out any blood clots, conducted by a very experienced and […]

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